I'm the owner of the blog Fibromyalgia Confessions. I decided to make this blog as a way to get information out to all of you. When it comes to living with Fibromyalgia knowledge is power. The more you learn about Fibromyalgia as an illness and about your own personal Fibromyalgia, the easier it will be for you to find a balance in your life. Once you find that balance it's amazing how much easier some things are. Fibromyalgia is painful and will always be hard to deal with but I think we should do all we can to make it as easy as it can be.
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Yes, Fibromyalgia is considered a syndrome. This means that it is characterized by a cluster of symptoms that consistently occur together. While the definition of disease is this: A disorder of structure or function in a human, animal, or plant, esp. one that produces specific signs or symptoms or that affects a specific location and is not simply a direct result of physical injury.
The reason they call Fibromyalgia a syndrome is because they don’t know what causes it yet. The issue that I, and many others, have with the term syndrome is that so many Doctors and people in our lives think “syndrome" is synonymous with "not serious" so when they hear Fibromyalgia Syndrome they dismiss it. I can’t tell you how many times I’ve heard, “It’s just a syndrome, it’s not a disease.”
What they do know about Fibromyalgia is that it seems to come from a part of the brain working incorrectly. Now, look back at the definition of disease. With the knowledge that in Fibromyalgia patients a part of the brain is not working correctly, I think it’s safe to say that Fibromyalgia is a disease by definition, wouldn’t you?
In addition to all this, many Fibromyalgia associations and groups such as the NFA have been working on getting the medical term for Fibromyalgia changed from Syndrome to Disease because of all of the discrimination we receive because Fibro is currently identified as a syndrome.
So what do we call it right now? I say fuck the syndrome shit. Those of us with Fibro know what it does to us, how terrible it is, and that it’s more than “Just a syndrome.” So if you wanna call it a disease, then do it. I do and will continue to. By definition it is a disease and just because the medical world isn’t quite ready to recognize the seriousness of this illness doesn’t mean we can’t.
I am constantly getting Facebook messages, emails, tumblr asks, and tweets from people claiming that they have the cure to Fibromyalgia and if I’d just listen to them I’d know the secret too. These people are just looking to take advantage of sick people, don’t listen to them. They scan the social media sites looking for people with illnesses that they can scam or just feed a lot of bullshit to. I know, we all wish that one of these people really does have the answer but I can assure you that they don’t. If there really was a cure out there or some magic medication or vitamin that made all the pain go away, we would know about it already.
About fifty percent of these people will want you to eventually buy some supplement that they swear will make all your pain go away. They might even have people who claim that they’ve tried it and been cured. The people they have make those claims probably never had Fibromyalgia at all, more than likely they were hired to say those things to help make it all look more legit. The other fifty percent of these people who will contact you claiming to know the secret to making Fibro disappear will probably be one of two things: Religious folks who will tell you all you have to do is ask God to cure you and you’ll be all good; or people who will tell you things like: ”If you just drink your own urine and then do yoga with a turtle you’ll be fine.” Neither of those two kinds of people have a clue as to what they’re talking about. I bet more than half of us have already asked God to help the pain go away, I’m pretty sure things don’t happen that way-Whatever God there is doesn’t just heal people. And, we’ve all heard crazy “cures” for Fibromyalgia, some of which we’ve even tried-none of which work.
So, bottom line is: Ignore these scammers, faith healers, and weirdos. They don’t have the cure, they don’t know some amazing secret that the rest of us don’t. It’ll just make you feel worse if you get your hopes up and it all turns out to be bullshit. The best you can do is keep up with medical research and advances in the treatment of Fibromyalgia. I have faith that one day they may figure out how to really help us.
Hi! I am the creator of Fibromyalgia Confessions! I decided that not only did I want to bring the fibro community together but I’d also like to help bring them information. When it comes to Fibromyalgia knowledge is power. The key is to learn as much as you can about fibromyalgia and learn as much as you can about your personal fibromyalgia. Eventually, you can find a kind of balance that can make living with fibromyalgia a lot easier. This blog is going to be all about bringing you that information. If you have questions about fibro or suggestions for blog content, feel free to stop by my ask box. Also, don’t forget about my other blog www.fibromyalgiaconfessions.tumblr.com where you can read other’s experiences and even submit your own to be included on the blog. I hope that you all like this blog as much as you like FC!